Searchable abstracts of presentations at key conferences on calcified tissues

ba0002p29 | (1) | ICCBH2013

Coping with osteogenesis imperfecta; what kind of difficulties are families living with?

Arabaci Leyla Baysan , Bozkurt Sati , Vara Senay , Ozen Samim , Goksen Damla , Darcan Sukran

Aim: Osteogenesis imperfecta (OI) the most common genetic disorder of bone is characterized by frequent, unpredictable fractures of long bones with progressive skeletal deformity. Although patients with OI are severely affected physically, this disorder may have a profound influence on patients and their families. This report reviews the extent of this influence, which includes the emotional burdens, the social costs of immobilization and repeated hospitalization.<p class=...

ba0002p30 | (1) | ICCBH2013

The effect of psychoeducation in families with osteogenezis imperfecta

Bozkurt Sati , Arabaci Leyla B Aysan , Vara Senay , Ozen Samim , Darcan Sukran , Goksen Damla

Aim: To investigate the effect of psychoeducation program in families with osteogenesis imperfecta (OI).Methods: Sixteen family members of OI patients were included in the program. The research was designed as a semi structural, semi experimental pre and post test. The scales used were; Introductory Information Form, Burden Interview (BI), Coping Strategies Scale (CSS), Problem Solving Inventory (PSI), and Psychosocial Adjustment to Illness Scale (PAIS)....